Victoria's Victory: Tired Little Girl

Saturday, August 28, 2010

Tired Little Girl

Victoria completed her regular bedtime routine, but instead of laying on the sofa with me until she fell asleep she ran to sleep in my bed. She looked so cute under the blanket lying on my pillow that Hubby said she could sleep with us tonight. She woke up super early - around 7:15 am. Hubby said she had to go back to bed with me. But she didn't stay there. Around 9 am he found her in the kitchen - sleeping on the floor.

Her bear makes a good pillow.

And the book at her feet is one of our favorites - Time for Bed by Mem Fox.

Here are some other random pictures of her sleeping. Where do your children sleep?

Make an on-line slideshow at www.OneTrueMedia.com

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My daughter has Cystic Fibrosis

Cystic Fibrosis is a life-shortening genetic disease that causes mucus in the body to be unusually thick & sticky affecting many parts of the body including the respiratory system, digestive tract, and reproductive system. The thick sticky mucus in the lungs can provide germs a prime breeding ground for infections. Cystic Fibrosis doesn't affect the immune system, but the thick sticky mucus is harder to move and can make infections much more difficult to clear.

Most people with cystic fibrosis are pancreatic insufficient (PI) and need to take digestive enzymes with every meal. Being PI makes it difficult to gain weight and often results in needing to eat 150% calories of normal. Over half of people with CF eventually develop CFRD (Cystic Fibrosis Related Diabetes). While sharing some traits with Type I and Type II diabetes, it is distinctly different.

CF affects approximately 30,000 people in the USA (70,000 worldwide).

65 Roses is another name for Cystic Fibrosis because some children find it easier to say although that doesn't make it any easier to have. My daughter has no such difficulty. But there is a story behind the phrase.

For more information on Cystic Fibrosis visit www.cff.org.